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Category Archives: Updates

Follow my progress through 3 life saving heart operations and my recovery

Week Commencing 1st March 2009

Week commencing 1st March 2009 – I’ve been a very clever girl since daddy last did an update… I’ve also had to be very brave and I’ve put on even more weight! My home nurse has been coming to see me every week since I got home from hospital in November. She weighs me with her special scales (which I don’t like because it’s
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Week commencing 9th February 2009

Week commencing 9th February 2009 – What a busy couple of weeks I’ve had! I’ve gained more weight, been stabbed more times than I care to count and been given a clean bill of health from my special heart doctor from London! The day after daddy did my last update I needed to go to the hospital to have my INR level checked. It
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Week commencing 26th January 2009

Week commencing 26th January 2009 – First of all I’d like to apologise for the lack of updates recently. Daddy has been very busy launching his new website, building a new website for a client and working too! Luckily he still has time to play with me though so I’ll forgive him just this  once. The last time daddy did an update I weighed
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Christmas Day 2008

Christmas Day 2008 – We all got up very early today and Dylan was very excited! When mummy took me downstairs there were lots of pretty boxes under our Christmas Tree and Dylan said that Santa had been while we were asleep. We had to wait a little while for daddy to wake up and then Dylan started tearing the pretty paper off all
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My first birthday 16th December 2008

My first birthday 16th December 2008 – We all got up very early today. When we got downstairs there were lots of pretty presents and cards for me! Dylan helped me open my presents and cards and I had a great time playing with all my great new toys! I got some new teddies, some bashing toys, some musical toys, some In the Night
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My first birthday party 14th December 2008

My first birthday party 14th December 2008 – Mummy and daddy had been very busy last night when I was asleep. When mummy got me up and took me downstairs there were lots of pretty things saying ‘Happy Birthday’ all over the place along with lots of balloons! It all looked very nice and I was very impressed. I had my milk and then
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Week commencing 8th December 2008

Week commencing 8th December 2008 – December is a good month for me. I was born on the 16th of it, I only had to stay in hospital for a few hours (after I was born!) and my special doctors from Great Ormond Street Hospital told mummy and daddy that my heart is no longer showing signs of heart failure! I had my heart
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Week commencing 1st December 2008

Week commencing 1st December 2008 – Hospital life seems a distant memory now. We still have to go back twice a week for my ritual stabbings (usually it’s one or 2 in both my feet but sometimes it can be more if it’s not done right – I make it very obvious I’m not happy!) to test my INR levels. It looks like my
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Week commencing 24th November 2008

Week commencing 24th November 2008 – It’s hard to believe I’ve been home for just over a week now! I’ve settled in very well and love being able to watch tv and sleep in my comfy chair without worrying about any nurses coming in and stabbing me all the time. Since I’ve been home I’ve had to go back to the hospital 3 times
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Wednesday 19th November 2008

Wednesday 19th November 2008 – Daddy woke me up today and tried giving me some ready brek made with my special milk. I wasn’t hungry though so I didn’t want any. I had my medicines and then daddy took Dylan to school and me and mummy had a cuddle in her bed for a little while. Then mummy gave me my milk and I
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