I was eventually allowed to go back to my local
hospital in Norwich where I was given my own room again. It was ok
but a bit lonely when mummy and daddy couldn't come and see me. I
liked to watch my television when I was awake, but I did sleep a
lot.
Mummy and daddy were told that I would need to stay in hospital for
a while and learnt how to give me all my medicines at the right
times during the day. I have to take medicines at 6am, 7am, 12pm,
2pm, 3pm, 6pm, 10pm, 11pm and 12am! Sometimes I only have 1 and
sometimes I have 3. They are all to help me recover from my
operations.
The doctors have told mummy and daddy that I am going to be fine and
will take up to a year before I fully recover, although there are
signs of damage to my heart caused by my heart failure, this
shouldn't cause me any long term problems.
Me at home June 2008
Now I am home and I have settled very quickly. I fall asleep at 10pm and have to be woken up to have my milk and medicines! I sleep through the night until mummy or daddy get me up at 6am. I am much happier now and my chest doesn't hurt like it used to so it was definitely worth going through what I did.
I hope my story helps other mummy's and daddy's and
their children who have to go through a similar experience.
Thank you for visiting my website.
Love Tiana xx
