Wednesday 24th September 2008 – I was a very good girl last night and slept all night apart from when my nurse came to check my temperature and give me my medicines. I also woke up when the X-ray nurse came very early in the morning but I soon went back to sleep. Daddy arrived very early today and the nurse told him how
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Tuesday 23rd September 2008 – Daddy had to take mummy home last night because my big brother is really missing all of us. Mummy was very upset because she didn’t want to leave me but she is also worried about Dylan so it was a very difficult decision for her to make. I think she has done the right thing though because I have
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Monday 22nd September 2008 – Mummy and daddy got to see me eventually. They got locked out of their room after going out to get a cup of coffee in the morning because a workman took their key to do some repairs! They were told by my nurse that my procedure to fit a Hickman Line would be done in the afternoon. I was
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Sunday 21st September 2008 – I had a peaceful night and, although the bleeding in my chest hasn’t stopped, it has reduced enough for the doctors to allow me to have some milk. I’m being given 4mls an hour through the tube in my nose. The nurse has put some special gel on my eyes to prevent them from drying out because I can’t
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Saturday 20th September 2008 – I had a very unsettled night last night and the nurse had to call mummy and daddy at 6am to tell them I was bleeding in my chest and that my right lung had collapsed which was stopping me from breathing properly. She told them I would need a new chest drain put in and that it would probably
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Friday 19th September 2008 – Mummy and daddy came to see me very early today because daddy said they couldn’t sleep as I had to go for an operation to fit a Hickman line. I was awake when they came and I played a little game with them. I opened my eyes to make sure they were there then, when they looked at me,
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Thursday 18th September 2008 – After a fairly quiet day yesterday I thought I’d liven things up… When mummy and daddy arrived this morning I was fast asleep. Then I heard daddy talking to the nurse so I woke up. Mummy and daddy held my hands again while the nurse gave them an update on my progress. She told them that I would stay
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Wednesday 17th September 2008 – I was a lot more alert today when mummy and daddy came to see me. I tried to cry so they would cuddle me but no sound was coming out so I held their hands so they wouldn’t leave me and every time they let go I cried again. The doctors and nurses told mummy and daddy they are
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Tuesday 16th September 2008 – No real change in my condition. The ventilator is still in place and I am on sedatives and pain killers. Mummy and daddy were told I would need another operation (albeit minor in comparison to my previous 3!) to fit a more permanent line – called a Hickman Line – so that they can give me medicines more easily
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